Our Curious Life: Week 7




You won’t believe this, but I might actually get week 7’s blog out on time… it only finished yesterday, which means I am actually sitting down to write it on time… Isaac is mastering his new skill of hitting the toys hanging above his play-mat… and I am typing!  What is this life?

Ok so week 7 started in a panic… last Sunday night our power went out for the first time since we brought Isaac home… which meant no oxygen concentrator for him and the freezers containing all the liquid gold breastmilk were slowly warming up… I wasn’t super fussed about the oxygen because we had tanks Isaac could use to sleep, but the idea of just going to bed not knowing if the breastmilk would survive the night was certainly anxiety inducing.  For a while I just sat on the couch in the dark with Isaac thinking about all the time I would have wasted if we lost that milk… all the things I could have done instead… all the anxiety about washing them well enough for his tiny little body… all the water we would have wasted washing the darn things… and the reality of the fact that my supply was slowing, so there was no way I could replace it, even if I really really wanted to.  So much of my life has been expressing milk during the last 6 months… not just a little bit… but hours of my day… so after some panicked tears I rang my dad, woke him up, and asked for some freezer space… because even though my quick google search told me the freezer would be fine until morning, I couldn’t fathom risking it.  Thankfully, dad was very gracious and understood my desperation… even if it was a little irrational, and just told us to come on over… on the way to his place we realised we had access to a bigger freezer at our church… but when we got there to unload it all for the night, we learned that our power was back on… so we just turned around and went home with it… A lot of panic for nothing in the end… but it made for an eventful start to the week.

The rest of the week turned out to be the week of the Grandma’s and air tests… it started with a lunch date with Grandma Meg on Monday and Finished with Nana Shirl coming to story time with my sister in law and nephew… oh and we had brunch with Auntie Grace on Tuesday and dinner with Auntie Ness on Wednesday between school and Dave’s Music Interest Night… Isaac and I stayed to take some pictures and then checked out the Eastlink track on a little walk.

This week we also marked some pretty massive milestones… Isaac tried some food for the first time, which is very exciting… although I feel like I had just got the hang of milk feeds… but I guess that’s the reality of parenting… as soon as you get comfortable they change the rules.  And… (here is where the air tests come in) we got the ok to stop using the oxygen at night as well… Isaac had two tests in room air (just good old regular air) overnight, one Monday and then a follow up test on Wednesday just to confirm the results.  The initial results from Monday were great, so we are good to live oxygen free, unless they see something in the test from Wednesday that makes them change their mind… but so far so good and we haven’t turned on the concentrator, or plugged in a tank since Wednesday…  which is terrifying, but a huge moment for us… We aren’t living ‘oxygen free’ just yet, as I still feel the need for a safety canister when we go out, his room still has a supply of tanks and the living room is still home of the giant concentrator… but we are getting much closer.  I think once they have collected all the oxygen equipment I will really believe we are done with it and that he can actually do it all by himself.

This is the first week all year that we haven’t crossed anything off the list… but that’s ok… we have been spending a lot of time watching the Winter Olympics instead… which are flipping amazing… I think I have decided that I enjoy them even more than the Summer Olympics and I think it is just the risk of death or injury that sucks me in… These athletes are so incredibly brace… maybe a little nuts… but incredible all the same.  Isaac seems to like them too.

So there you go… week 7 was pretty big even without the list.

Our Curious Life: Week 6




Wow… week 6, what the heck? How did we get here? To be honest as I sit down to type this I can’t remember what we did this week… maybe we can work it out together.

This week was also filled with friends, we had lunch with my work bestie and her partner and super cute little girl, we caught up with some of my high school besties and we caught up with my mum and avoided the heat with a day at the shops.  We walked a lot, including a return to parkrun yesterday… which felt much earlier than I remembered, but it was good to be back nevertheless. and we had a lot of appointments.

On Monday night I went back to choir… which in the craziness of 2017 never got mentioned.  It’s a choir that was formed out of  a one off performance I was part of to celebrate a teacher at my high school.  Since then it has become a legit thing and I was attending weekly until I ended up in hospital before Isaac was born.  So going back this week feels pretty great.  Plus it fills me with all the school nerd feels!  At choir I also received a copy of some family photos we had taken by the lovely Georgia from Allegro Photography. Which means no. 6 can now be officially crossed off the list.  The photos turned out so beautifully… thanks Georgia.

This week Isaac also got good reports from the physio, dietitian and the respiratory team… so good in fact we are off day time oxygen!  AMAZING!!!  It is so strange not to have him attached to the tank and I think it is going to take some adjusting on my part to trust him without it.  Dave and I have done a few little outings to help me get used to the idea… but it has been 6 months of life with oxygen… it will take time.  It is so fun though being able to walk away from the pram, the bassinet, the car… everything without having to worry about where the cord is.  He is free… well at least during the day.  Seriously… yesterday we left the pram in the car while we attended a first birthday party… we just had us, Isaac and the nappy bag… so so so strange.

We also re-attempted story time, although we went to a different library and with some buddies and it was so much better… library story time is back on the list of things we like to do… as long as we have a buddy and a coffee date booked for after.

Turns out week 6 was quite eventful… bring on week 7.

Five Minute Friday: Privilege

Ok it’s been a long time since I have done one of these… almost a whole year… but I figured if I want to be deliberate about keeping my blog going with a baby… five minutes was a good place to start… and it comes with no other pressure than the clock… which is good… and necessary.  Anyway, if you want to know more about Five Minute Fridays you can click that link just a few words back, or you can look at the last one I did here.   Ok… 5 minutes here we go.


Ok… firstly I don’t think I knew how to spell privilege before this… I am pretty sure I have been doing it wrong… thank goodness for auto correct.

Privilege is a word that has been getting a lot more air time than ever before… and I think it is one that I have been thinking a lot more, about my own privilege, the things I get to do just because of the circumstances I was born into… and I often find it overwhelming.  But that’s not the kind of privilege I really want to talk about… because as I sit here typing this my little boy is asleep next to me and he has me thinking about what a privilege it is to be his mum.

Privilege can be defined as “a right, immunity, or benefit enjoyed only by a person beyond the advantages of most”…. It’s a good thing, something enjoyable beyond the advantages of anyone else but sometimes I lose the enjoyment part because being his mum is also a huge responsibility.  I get to help shape this little man as he grows, teach him, guide him and help him.  There is a verse in Proverbs (Proverbs 22:6) that says “Direct your children onto the right path, and when they are older, they will not leave it.” and that’s what I am aiming for… There are so many things that I would like for him, things that I hope to teach him, things I hope to show him and things I hope to watch him achieve… and in that sometimes I feel overwhelmed… because I want to do a good job, and lead him in the ‘right’ way.  But when I get caught up in the responsibility I lose sight of the incredible privilege it is… the fact that while trying to lead him in the way of the Lord, I also get to know him probably better than anyone else on earth ever will… I am his person… and while my role might change as he grows… it can’t be taken away, I am always going to be his mum and that, right there is the privilege.  I get to share in his joys, his sorrows, his challenges and his achievements.  His victories are my victories.  At least for the next little bit we will do it all together… and that is an amazing thought… that is privilege.


Our Curious Life: Week 5

Far out week 5, you have been busy… seriously busy!  This week has been full of people… which if you ask me is a great way to spend any week.  We started with the Thrive BBQ on Sunday, where we survived the crazy hot weather with 30ish other Thrivers swimming, eating and watching the tennis and we finished the week celebrating a beautiful bride to be. During week 5 we brunched and lunched with Mum, Lorraine, Clare, Jess, Dave and some of my work mates on Monday, Thursday, Friday and Saturday… I love brunchy lunches the most, if my waist line and my hip pocket would allow all of my weeks would look like this. Oh and all that brunching meant no. 94 is off the list because I also love an iced coffee.

This week also brought some new ‘mum’ things for us… I went to my first mothers group (no.45), which I actually loved.  I had been so nervous about attending, because despite being fairly out going, I find new situations, especially new social situations quite unnerving.  I had also pinned a few local community hopes on having a good mum’s group.  When Dave and I moved house we moved to a suburb where we didn’t know that many people, and despite some intentional effort we have found that most of our life still exists back in blackburn… we have made some more local friends through Dave’s work, but this was my chance to find some more local community, which meant that mother’s group had a lot of pressure on it.  It had always been something coming… and now that it was here, I was really feeling it… it also didn’t help that they had given me the wrong date so I was joining on week 2… but now that it is done I am hopeful, it was good… and I think it will just get better.  My fellow mums were super lovely, and very understanding.  They were interested in how Isaac and I were going and hearing about his journey without making me feel different.  It was just really nice.

We also tried story time at the library this week, which after my mothers group experience was the total opposite… we didn’t love it, which was super disappointing because I had really been looking forward to it.  I think that there were a couple of reasons we were disappointed…

1. Our expectations were really high… probably too high, it was probably unfair to expect them to be met.

2. I don’t think I had really thought about what would happen at story time and the fact that I wouldn’t be able to explain the fact that Isaac is well and actually really good… instead people would just see me and a baby with oxygen prongs and a tank… People meant well, but there were lots of looks of pity, which we don’t need… we are smashing this…

3. I didn’t have a buddy… I should not have gone alone… also something that I didn’t think about… but at the end when all the other mums found their friends and went and got coffee… the fact that we weren’t the same was really just confirmed… we were outsiders… sure I was probably being a little sensitive, but it was pretty lonely… next week we will story time with some buddies

4. It was also the first time we went into a group where people hadn’t journeyed with us, they didn’t know our story, where we had come from, what had happened… they just saw Isaac’s bonus attachments and filled in the blanks.  We have been so blessed to have so so many wonderful people surround us over the past 2 years, who have just taken us as we are, loved us through the good, the bad and the really hard and who haven’t pitied us, or made comments or made us feel different… so I guess I just assumed story time would be the same… especially after being so pleasantly surprised by mothers group… but I guess the saying is true… you should never assume.

So… we are not riding story time off just yet… but we will make some adjustments and try again… hopefully we will have weaned down the oxygen enough that we can leave it behind… we will find some story time buddies… and really even though it wasn’t quite what we had hoped it still crossed no. 12 off Isaac’s list and no. 18 and I think no. 26 off my list, as we did all of our outings this week with a tank attached (and we got an early delivery of tanks so I had to swap the regulator over before we left the house)… but I only have two pictures to show.. because Isaac and I have the same photo for no. 12 and no. 18.

In happier week 5 news… we survived a whole week with Dave at work and we started a new month which means January is over, here is what it looked like in pictures:

And… Isaac is now 6moths old… check him out… At 6 months he loves to smile and kick his legs.  He loves bath time and splashing with Daddy and he is slowly weaning down off his Oxygen and tolerating his hip brace like a superstar!  What a champion!

Thanks week 5